Now, hear from Sophia’s mom, Lilly! 

What helps you take care of herself? I have an amazing husband who reminds me to take time to myself. 

What advice do you have for others? Listen to your child. Let her express her frustrations, fears and concerns. Work with your child to find a solution that she can work with. Allow her to be in control of her care, empower your child! 

What do you want others to know about pain? Pain is not something you can see but it’s very real. Supporting someone with chronic pain means to accept you can’t always help them to reduce their pain. Being a listener and not someone who offers solutions goes a long way for them to feel acknowledged and cared for during times of pain. Frustration is part of the course but offering distractions also helps immensely.